Understanding ALS
ALS is a progressive neurological disease that takes away the body's ability to move, speak, swallow, and breathe. The mind stays completely sharp. The person is fully present. But the body stops responding, one function at a time.
There is no cure.
Most people don't know this part until it's their family. Annual ALS care costs can exceed $200,000. Wheelchairs, ventilators, and communication devices cost tens of thousands each. In-home care can run $15,000 to $20,000 a month. Insurance covers far less than families expect. Many caregivers leave their jobs entirely to be there full time.
The financial pressure and the grief arrive at the same time.
THE REAL COST
Most people live two to five years after diagnosis. From the moment a family gets the news, time becomes everything.
LIFE EXPECTANCY
Why this should matter to all of us
Susie lived this. Her family lived this. Every dollar raised through our events supports ALS research and families going through exactly what Susie's family experienced.
When you show up, you do something real for a family you may never meet.
Make an Impact Today
Your support isn't symbolic. It's a family getting equipment they couldn't afford. It's a caregiver getting a break. It's real, and it's needed right now.